Wednesday, October 29, 2014
Ebola Patient Zero: What we do, and do not, need to know about an epidemic index case
But do we actually need a name?
Epidemics aren't only about hard science. And while learning all we can about the virus and its transmission will allow us to better fight future epidemics, we shouldn't neglect the human element in the pursuit of knowledge. We have numbers on graphs and charts: cases, deaths, beds. But these statistics are about people and it's often the human stories that drive us. Maybe that's why we look for the names. But should we look for that name?
Many index cases are known, some even famous. You've heard of Typhoid Mary no doubt? Her real name was Mary Mallon and she was forced into isolation after it was discovered she was the (unintentional) cause of dozens of typhus infections. We also know the names of the index cases for the 2003 SARS, the 1854 cholera, and the 2009 swine flu outbreaks. We even know the name of the very first Ebola index case ever recorded, from the 1976 outbreak.
And now we know the name of the index case in this Ebola epidemic. We have had the information regarding the index case for a while now. We've known it was a child in Guinea and we've known that, as the first family afflicted by this epidemic, their losses were great. But now we've also been given the name of the two-year old child who was Ebola's first victim last year.
Did we need that? Did we need to see the family photos? Did it teach us anything about the epidemic? Did this information give us anything useful or just headlines? Did it serve only to exploit the tragedy of a family that lost everything? Did it do anything useful other than put a name to the epidemic? Did it give us someone to blame?
I believe there are many (maybe most) who will not blame this child or his family, but there are those who will. This tragedy will be replayed again and again and the stigma that's already been borne by the family and community will also be replayed. How can it not? This is the largest, most horrific Ebola epidemic in history. Thousands are dead, more dying and it's not over. Who knows what the final toll will be when all is said and done? We can't know that now, but when we do we will be able to trace it all back to one chance encounter with something infectious; one innocent child, one loving family, one community that had no idea what they were up against. A horrific tragedy in every sense of the word.
And by publishing this precious child's name and family photos for our consumption, have we added to our understanding of the epidemic, or is this a new tragedy - one that we must own?